Use this URL to cite or link to this record in EThOS: https://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.818748
Title: Young onset dementia as experienced by family members
Author: Regan, Daryl
ISNI:       0000 0004 9355 9216
Awarding Body: University of Glasgow
Current Institution: University of Glasgow
Date of Award: 2020
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Abstract:
Background: Young onset dementia (YOD) is estimated to make up around 5% of dementia diagnoses (Prince et al., 2014). Obtaining a diagnosis can be complex, with multiple diagnostic pathways. Partners of those with YOD are often involved; however, little is known about their experience of the pre-diagnostic phase from initial symptom recognition to diagnosis seeking. Aims: To explore partners’ experiences of the pre-diagnostic phase of YOD. Specifically, the study aimed to analyse how partners make sense of being involved in the process of seeking help from healthcare services. Method: The study utilised a retrospective qualitative design. Seven partners of individuals diagnosed with YOD within the last three years, were recruited from a community Young Onset Dementia Service within NHS Greater Glasgow & Clyde. Semi-structured interviews were transcribed verbatim and analysed using interpretative phenomenological analysis. Results: Three superordinate themes were identified from partners’ experiences: ‘changing relationship with partner’, ‘challenging relationship with healthcare services’ and ‘conflicted relationship with the diagnosis’. Conclusions: The findings provide valuable insights into partners’ experiences of the pre-diagnostic phase of YOD. Themes discussed offer healthcare providers factors to consider when designing and providing services for those with YOD and their partners. Further research exploring experiences of partners with different characteristics would be helpful in generating further knowledge to inform service development.
Supervisor: Not available Sponsor: Not available
Qualification Name: Thesis (D.Clin.Psy.) Qualification Level: Doctoral
EThOS ID: uk.bl.ethos.818748  DOI: Not available
Keywords: BF Psychology
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