Use this URL to cite or link to this record in EThOS: https://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.817617
Title: Is law and practice successful in enabling and facilitating children's participation in their health care? : a critical analysis through the lived experiences of past-paediatric patients
Author: Limb, Rebecca
ISNI:       0000 0004 9357 7959
Awarding Body: University of Warwick
Current Institution: University of Warwick
Date of Award: 2019
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Abstract:
The law accords children the right to participate in their health care. However, within academic literature there has been growing concern that because of the complexity of the law of child consent, children are not meaningfully participating in their health care. This thesis seeks to investigate whether law and practice are successful in enabling and facilitating children's meaningful participation in their health care. This study asks how do children participate in their health care, is it meaningful and why might children not be meaningfully participating in their health care? To address these research questions, I conducted an empirical qualitative research study using IPA methodology. This study interviewed 18 past-paediatric patients and four health care professionals seeking to document their 'lived experiences'. I conducted an analysis using typologies of participation as evaluative tools. The research findings suggest that children do participate in their health care, however, that their participation is often limited, tokenistic and inconsistent. Where a child's ability is at the edge of their participation and they do not desire more, I claimthat their participation was meaningful. Where a child's ability is beyond the level they are participating at and they desire more, their participation is not meaningful. This study identified legal and practical barriers to meaningful participation including the ambiguity of the law in particular, the assessment of Gillick competency and 'due weight', the lack of guidance accompanying the law, doctor-child communication, physician and parental paternalism, selective information and the limited opportunity to participate at a higher level. I recommend that law and practice are reformed to introduce tools to assist doctors in encouraging and facilitating children's meaningful participation in clinical practice. Further research is needed to find effective methods for enabling and facilitating children's meaningful participation in their health care.
Supervisor: Not available Sponsor: Snowdon Trust ; FfWG Funds ; Knowle Hill School Trust ; George Memorial Trust ; Yorkshire Ladies Educational Trust ; Postgrad Solutions
Qualification Name: Thesis (Ph.D.) Qualification Level: Doctoral
EThOS ID: uk.bl.ethos.817617  DOI: Not available
Keywords: KF England and Wales ; RJ101 Child Health. Child health services
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