Use this URL to cite or link to this record in EThOS:
Title: Parenting a child with congenital heart defects
Author: Lumsden, Midori
ISNI:       0000 0004 9353 9258
Awarding Body: University of Manchester
Current Institution: University of Manchester
Date of Award: 2018
Availability of Full Text:
Access from EThOS:
Access from Institution:
Paper 1 is a metasynthesis and qualitative analysis of studies exploring coping in parents who have a child diagnosed with a congenital heart defect (CHD). Six databases were systematically searched using key words and index terms to identify the qualitative literature exploring parent coping strategies for managing the issues of having a child with CHD. Twenty-two studies met the inclusion criteria and quality appraisal conditions. These papers reported on 704 parents' coping needs and strategies from their child's diagnosis, undergoing multiple operations, providing health care and looking to the future. Four core themes emerged from the synthesis to describe the processes that enable parental coping: Emotional response, Support systems, Parental management and Avoidance. Recommendations were made for professionals who came into contact with families. Findings and limitations were discussed in relation to the existing literature. Paper 2 explored the lived experience of 12 parents who had a child with single ventricle CHD, who had completed all stages of the Fontan surgical procedure. Interpretative Phenomenological Analysis (IPA) of the data identified three superordinate themes that captured the parent experience: Super-parenting, Accepting CHD and their role, and Striving for Normality. These themes were divided into further subthemes that explored the intricacies of the parenting journey from diagnosis, through surgeries and into childhood and adolescence. Clinical implications are discussed in relation to the role of psychologists working with families in health care settings. Paper 3 is a critical reflection of the research. This paper discusses the rationale for the research design in both papers. Approaches to interviewing and analysis are reviewed with reference to researcher reflexivity, and a model of parent experience is proposed.
Supervisor: Wittkowski, Anja ; Smith, Debbie Sponsor: Not available
Qualification Name: Thesis (D.Clin.Psy.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available
Keywords: qualitative ; IPA ; parent ; CHD ; interview ; cope ; child ; adjustment ; family