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Title: Self-management support for people with Multiple Sclerosis
Author: Al Abbad, Badrieh Khalil Nimer
ISNI:       0000 0004 9357 3050
Awarding Body: Keele University
Current Institution: Keele University
Date of Award: 2020
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Background: Self-management programmes help people with long term conditions, such as Multiple Sclerosis (MS), manage symptoms, and contain utilization of health-care resources. However, the optimum level and type of support for people with MS (PwMS) to self-manage effectively is unknown. The research in this thesis set out to explore current self-management provision for PwMS, the experiences and perceptions of self-management support for PwMS from service user and provider perspectives, and to propose a best practice model of self-management support for PwMS. Methods: Following a scoping review of self-management programmes and self-management experiences of PwMS reported in the literature, a field study involving focus group interviews with health professionals providing self-management support for PwMS in three different services, and observation of those support services in action, was undertaken. Semi-structured interviews with eight PwMS receiving support from the three services explored their perceptions and experiences. Thematic analysis and synthesis of all findings informed a new ‘best practice’ model of support for PwMS to self-manage. Findings: The scoping review identified that published self-management programmes for PwMS focused mostly on fatigue management, interventions based on cognitive behavioural therapy/social cognitive theory to increase self-efficacy, and educational programmes, and insights into perceptions and experiences of self-management from the perspective of PwMS and health professionals were limited. The field study identified two important categories, the service and self-management provision, and themes of diversity of care, physical activities, interactions with others, and self-management. Themes identified from the interviews with PwMS were MS journey, MS services, and self-management. A model of best practice was created from synthesis and triangulation of all data from the review and empirical studies. Conclusion: A novel, comprehensive and holistic model of self-management support for MS has been proposed, which needs further refinement and co-production with key stakeholders prior to being tested for feasibility and acceptability.
Supervisor: Hunter, S. M. Sponsor: Not available
Qualification Name: Thesis (Ph.D.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available
Keywords: RM Therapeutics. Pharmacology