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Title: Developing the 'Carers' Alert Thermometer for Young Carers' (CAT-YC)
Author: Kettell, Lynn
ISNI:       0000 0004 8502 1811
Awarding Body: Edge Hill University
Current Institution: Edge Hill University
Date of Award: 2019
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Background: There are approximately 215,000 young carers in the UK, providing unpaid care such as housework, personal care and emotional support to family members. However, the real figure is estimated to be four times higher than this, as many remain hidden from official statistics. The care provided by young people may be long or short term, and when they have unmet needs arising from their caring role, this can impact on their health, well-being, education and transitions into adulthood. It is imperative, therefore, that young carers are triaged for support at an early stage, with ongoing monitoring to ensure they have the best opportunities to flourish. Aim: The aim of this doctoral study was to identify areas of burden experienced by young carers aged 11-18 and use their views and professionals' views to develop the Carers' Alert Thermometer for Young Carers (CAT-YC). The CAT-YC will act as a short screening tool to triage young carers to appropriate support, or a full assessment of needs, with the additional opportunity for ongoing monitoring of any unmet needs they may have. Methodology: A pragmatic, mixed-method, multi-phased, consensus approach utilising qualitative and quantitative data collected sequentially from a purposive sample of young carers and professionals via a focus group, interviews, a Delphi survey and consensus group meetings. Findings: Data from 26 young carers (n=17 individual interviews; n=9 focus group) were thematically analysed and developed into the first round of a 4 round Delphi survey. This was completed either online or at small group meetings by 96 participants in round 2 (n=68 professionals; n=28 young carers) and 110 participants in round 3 (n=74 professionals; n=36 young carers). In round 4, a further 19 members of an expert panel (n=11 young carers; n=8 professionals with a national or regional strategic role in young carer support) reviewed and ranked the final items for the CAT-YC. It was then piloted by three organisations working with young carers and a short evaluation of the pilot study (n=6 professionals; n=4 young carers) tested the readability and usability of the CAT-YC.
Supervisor: Knighting, Katherine ; Jack, Barbara ; O'Brien, Mary Sponsor: Not available
Qualification Name: Thesis (Ph.D.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available
Keywords: Young carer ; Delphi ; Mixed-methods ; Screening Tool ; Assessment of Needs