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Title: The experiences of parents who have a child with an intellectual disability
Author: Codd, Jonathan
ISNI:       0000 0004 7654 0863
Awarding Body: University of Oxford
Current Institution: University of Oxford
Date of Award: 2018
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Parenting a child with an intellectual disability is associated with high levels of challenges and increased parental stress. Interpretive Phenomenological Analysis (IPA) is a qualitative research methodology that has been increasingly used to explore the experiences of parents of children with intellectual disabilities. The first paper is a systematic review which identifies the range of IPA research exploring the experiences of parents who have a child with an intellectual disability and evaluates the quality of papers. Twenty studies were identified, findings of which were critiqued and synthesised. The review found that parents of a child with an intellectual disability experience a range of difficult emotions and practical difficulties, and that the level of parent coping is related to external support. Studies showed strengths in most areas of methodological rigour pertinent to the quality of IPA. Areas for improvement included reflexivity, ethical considerations, justification of research design, and use of an inclusion and exclusion criteria in participant sampling. Future research should be conducted across a wider number of countries and cultures and with an increased focus on the experiences of fathers and older parents. The second paper presents an IPA study that explored the lived experiences of parents who had a child with an intellectual disability transitioning to adulthood. Transition to adulthood is an important life stage for young people and may be particularly challenging for people with intellectual disabilities. Ten parents were interviewed. The interviews were analysed and revealed three superordinate themes. These captured parents' experiences of difficulties and uncertainty related to their role, their child's independence, navigating services for their child, and accessing support for themselves. Increased collaboration and consistency from statutory services is required in addition to providing emotional support to parents and facilitating parent support networks.
Supervisor: Hewitt, Olivia Sponsor: Not available
Qualification Name: Thesis (D.Clin.Psych.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available