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Title: Climbing the ladder : supporting consumers to become active research partners in a Scottish consumer panel for osteoarthritis research
Author: Roome, Karen
ISNI:       0000 0004 7230 9066
Awarding Body: Glasgow Caledonian University
Current Institution: Glasgow Caledonian University
Date of Award: 2014
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Background While the notion of consumer involvement has been around since the 1970s, consumer involvement in healthcare research is a more recent development. Current evidence suggests that the levels of participation vary significantly and this must be addressed if involvement is to be meaningful and sustainable. Aim To gain an in depth understanding of the factors that could support consumers to be active and sustainable partners in musculoskeletal research. Methodology A qualitative constructivist grounded theory approach in line with Charmaz (2006). Methods Unstructured interviews with a purposive sample of seven consumers who had limited experience of involvement in musculoskeletal research but would like to be involved in the future. Emerging categories were explored during semi-structured interviews with a theoretical sample of ten more experienced consumers. Analysis was guided by Charmaz's (2006) method of coding. Findings A central category "Making a difference" with four main categories emerged. Two categories, 'Opening the door' and 'Regaining a sense of purpose' were associated with factors which motivate and support initial involvement. Recognition of these factors facilitates consumers to move up Arnstein's Ladder of Participation (1969). Two further categories, 'Providing a sense of security' and 'Building a sense of belonging' were associated with factors which build and support sustainable and meaningful involvement and allow consumers to be involved at the higher stages of involvement. Together these categories identified the factors that could make a difference not only to the relevance and application of research findings but also to the quality of the consumer experience. Conclusions Consumers want to be actively involved as research partners but need to be supported and guided at all stages of involvement. While attitudes and behaviours must be conducive to involvement, resources and realistic timescales are vital for longer term meaningful involvement. Findings will be supported with the Senses Framework (Nolan et al 2004) and used to support the development of a framework to guide consumer involvement.
Supervisor: Not available Sponsor: Not available
Qualification Name: Thesis (Prof.D.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available