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Title: Accessible information : collaborating with people with aphasia to develop an evidence-based template for health information
Author: Haw, Caroline
ISNI:       0000 0004 6421 9597
Awarding Body: University of Sheffield
Current Institution: University of Sheffield
Date of Award: 2017
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People with aphasia require information about their health. Guidelines highlight the importance of providing information to this population in an accessible format to support their health literacy. Studies suggest, however, that people continue to feel under-informed after stroke, a particularly distressing predicament in the presence of language impairment. This study aimed to develop a template for accessible information for people with aphasia. In Phase 1, literature regarding modified formatting for people with aphasia, facilitating language processing in aphasia, and information topics needed after stroke was reviewed, and principles for design extracted. These principles informed the prototype template, developed in collaboration with graphic designers. In Phase 2, fourteen people with a range of aphasia types and severity collaborated in an iterative design process. Participants attended two facilitated focus groups, using Talking Mats® to give their views on the template, and on specific issues relating to modified formatting. Discussions were recorded, transcribed, and analysed using Framework analysis (Richie & Spencer, 1994). After each focus group, modifications to the template were made following feedback. The collaborative, iterative design process resulted in the development of a template for conveying health information for people with aphasia. Analysis of the discussion data generated four themes: 'Visual access', 'The look of it', and 'Understanding', reflected the issues surrounding information access from the perspective of people with aphasia. The overarching theme, 'Everyone's different', captured the varied experience of aphasia for individuals. The findings informed the final version of the template, including relevant topics, language structures to maximise comprehension of text, optimum number of concepts per page, facilitative features of typography, use of images, and layout of information. In Phase 3, the template principles were translated into accessible information guidelines, which were user-tested, modified, and subsequently published by The Stroke Association. Designing for people with aphasia requires attention to the visual, cognitive, conceptual, and language processing demands, and consideration of the experience of aphasia. Further implications for practice and research are outlined.
Supervisor: Herbert, Ruth ; Gregory, Emma Sponsor: Not available
Qualification Name: Thesis (Ph.D.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available