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Title: How and by whom are the current and anticipated future support needs of adults with autism spectrum disorder met?
Author: D'Astous, Valerie Anne
ISNI:       0000 0004 6348 1120
Awarding Body: King's College London
Current Institution: King's College London (University of London)
Date of Award: 2017
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This thesis explored current, and anticipated future health and social needs, and support provisions of adults with ASD, from their own and family members’ perspectives. Using a cross-sectional mixed methods research design, 74 adults with ASD completed the Camberwell Assessment of Need for Adults with Developmental and Intellectual Disabilities (CANDID) and 49 family members participated in semi-structured, face-to-face individual interviews. Additionally, a comparative analysis of two age groups of adults with ASD (18-29 and 30+) was undertaken to investigate similarities and differences in reported need and support provision. Knowing what the health and social support needs of adults with ASD are is the first step in understanding how to best meet them. Quantitative findings suggest there may be an association between age and the level of support needs among adults with ASD. Older adults aged (30+ years of age) had greater levels of support need, and unmet support in comparison with younger aged adults (18-29 years). Specifically, high unmet needs of comorbidities of mental illness were reportedly unaddressed in this sample. Qualitative findings provided depth, details and varied perspectives of the lived experiences and support needs of adults with ASD. Results highlight a void in supportive services for adults with ASD with family members attempting to fill the adults’ support needs. The stability and continuity of family relationships and support for adults with ASD was emphasised but results suggested it may be diminished or absent in the future with greater need for formal support. Moreover limitations in communication, and skills of daily living placed adults with ASD at risk of harm and exploitation without adequate and effective support. Future support, wellbeing and safety of adults with ASD were primary family concerns but few had developed emergency or future support plans. These findings have relevance for service providers and public policy.
Supervisor: Glaser, Karen Faria ; Lowton, Karen Sponsor: Not available
Qualification Name: Thesis (Ph.D.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available