Title:
|
Experiences with people with Parkinson's disease : a qualitative approach
|
People with Parkinson's disease (PD) often experience psychological difficulties. Typically
the psychological difficulties associated with PD are conceptualised within neurobiological
models. The first aim of this thesis was to explore an alternative conceptualisation of
psychological difficulties in PD as a contrast to the individualistic medical model. Therefore
a narrative literature review adopting a social model of disability perspective was conducted.
This review used the concept of psycho-emotional disablism (Thomas, 2007) to explore the
social barriers and stigma surrounding PD, and how this may contribute to psychological
distress. The review highlights the need to broaden current conceptualisations of
psychological distress experienced by people with PD and advocates for further research and
clinical focus on the social barriers faced by people with PD.
The second aim of this thesis was to explore how people with PD experience apathy.
Apathy has become a focus in PD research, although it is predominantly conceptualised and
researched from a neurobiological perspective (Bogart, 2011). Therefore, a qualitative
exploration of experiences of apathy was conducted with seven participants with PD, using
semi structured interviews and interpretative phenomenological analysis (IPA). Participants'
experiences of apathy were captured in three themes: 1) "The apathy creeps into jobs that I
used to be able to do and no longer can do": Reduced motivation in response to the
consequences of impairment; 2) "I hate at the end of the day if I've achieved nothing": The
(un)acceptability of apathy; 3) "They say 'come on you lazy bugger, get something done"':
The social context of apathy. These themes offer insight into psychosocial processes
associated with apathy in PD. The final section of the thesis offers further reflections on the
research process, such as some methodological challenges that were experienced.
|