Title:
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The experience of stroke from the perspectives of survivors and partners
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This doctoral thesis explores the experience of stroke from the perspective of both
survivors and the partners of stroke survivors. It incorporates a literature review, a research
paper, a critical review and an ethics section. The literature review comprises a metasynthesis
of spousal experiences of coping with and adapting to care giving for a partner who
has experienced a stroke. Seven themes were identified which suggested a number of coping
strategies that spouses adopt although a number of barriers to these were also discussed,
together with clinical implications and suggestions for future research. The research paper
takes a focus upon the joint experience of couples when one partner experienced a stroke at a
young age, which for the purposes of this study was 55 years or younger. Eight joint semi-structured
interviews were analysed using IPA and indicated couples undergo an experience
of trying to make sense of the stroke and also undergo significant relationship role changes.
These changes incorporated a shift from being equal partners to a relationship where their
reciprocal roles resembled those of carer and 'cared for' and in some instances, this also had
echoes of the roles of parent and child. Implications for clinical psychologists and the wider
rehabilitation team were discussed with a recommendation for the 'couple' to be viewed as
the focus of intervention. Finally, in the critical review the researcher reflects upon the
strengths and limitations of conducting the research, including the analytic approach and joint
interviewing methodology. Suggestions for future research directions were also proposed.
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