Title:
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Palliative care professionals' experience of unusual spiritual phenomena at the end of life
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The provision of care at the end of life is currently considered to be global public
health issue. This thesis explores prominent issues within palliative care from the
perspectives of patients with palliative care needs, and also from the perspectives of
professionals working within that context. Firstly, a literature review focuses on the
communication experiences of patients with palliative care needs. A meta-synthesis of 15
qualitative studies exploring patients' perspectives yielded four overarching themes:
'Talking: facilitating and inhibiting factors'; 'The importance of humanitarian qualities';
'Perceptions of autonomy within communication experiences' and 'Individual differences in
preferences for honesty within interactions'. Overall the findings highlighted the complexity
of the communication experiences of patients with palliative care needs.
Secondly, a research paper explores palliative care professionals' experiences of
unusual spiritual phenomena at the end of life. Interpretative Phenomenological Analysis
[IP A] was used to identify four overarching themes within the accounts of eight palliative
care professionals which captured the essence of their experiences. These were: "Who are we
to say what's out there?": A connection with something beyond what can be seen; "It opened
up conversations"; The experience of talking about unusual experiences; "It knocked me
sideways": Managing the emotional impact of these experiences; "The fact she was so
accepting made it easier": The value of acceptance in relation to unusual experiences. These
findings emphasise the need for palliative care services to take a proactive approach to the
discussion of unusual phenomena at the end of life.
Finally, a critical review presents a personal reflection on the process of researching
palliative care professionals' experiences of unusual phenomena at the end of life.
Specifically, this review outlines reflections on undertaking IPA, the challenges of
conducting research on unusual phenomena with health care professionals, and the
experience of using a reflexive journal.
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