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Title: Quality of life in autistic spectrum disorder
Author: Forrester, Lene M. H. T.
Awarding Body: University of Edinburgh
Current Institution: University of Edinburgh
Date of Award: 2009
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This thesis describes the development and validation of an ASD-specific QOL assessment scale. The participants were 12 adults with a diagnosis of Asperger’s Syndrome, High-Functioning Autism and ASD without a learning disability associated with Grampian Autistic Society, as well as a family member or key worker for each participant, and professionals within the field of ASD. Scale development was based on the literature and QOL assessment in other relevant disorders. Face/content validity was investigated through a developed feedback questionnaire given to people with ASD (no=12), relatives of people with ASD (n=7) and health care professionals within the field of ASD (n=6). There is currently no gold standard for measuring QOL in ASD. Thus to investigate the criterion concurrent validity of the scale, the EQ-5D and the WHOQOL-BREF were used. To assess inter-rater reliability, two assessors were present for all interviews delivering the QOL-ASD, conducting half of them each, and having the chance to ask questions in all for the purpose of clarification. Test-retest reliability was tested by repeating the assessment with the participants 7 days after the initial interview by the same assessor. The results showed that the developed scale, the Quality of Life in Autistic Spectrum Disorder (QOL-ASD), had good face or content validity. It was further found to have good criterion concurrent validity. This was also true for the inter-rater reliability and the test-retest reliability of the QOL-ASD, which was found to be good. No significant relationships were found between the QOL-ASD and the descriptive data collected. The QOL-ASD was therefore found to be a valid and reliable scale for the measurement of QOL in ASD, and as such its use in clinical practice and research with this group can be supported by the research presented in this thesis.
Supervisor: Not available Sponsor: Not available
Qualification Name: Thesis (D.Clin.Psy.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available