Use this URL to cite or link to this record in EThOS:
Title: Exploring the experience of pain in adults with sickle cell disease
Author: Coleman, Beth
ISNI:       0000 0004 2749 7694
Awarding Body: Canterbury Christ Church University
Current Institution: Canterbury Christ Church University
Date of Award: 2013
Availability of Full Text:
Access from EThOS:
Full text unavailable from EThOS. Please try the link below.
Access from Institution:
Sickle Cell Disease (SCD) is England’s most common blood disorder whereby sickled shaped red blood cells block small blood vessels causing both acute and chronic pain. Currently there is poor understanding about the experience of SCD pain. Furthermore, there is a recognised difficult relationship between SCD patients and health care professionals (HCP) which has been found to prevent patients seeking medical assistance. Seven adults with SCD participated in semi-structured interviews regarding their experience of pain and receiving medical treatment. Interviews were transcribed and analysed using Interpretative Phenomenological Analysis (Smith, Flowers & Larkin, 2009). The analysis revealed three overarching themes: experiencing unimaginable pain, the dilemma of treatment and finding a life with pain. Findings suggest describing SCD pain is extremely difficult, participants favoured using analogies to attempt to communicate the constant, agonising, limitless, inescapable pain. Participants described that normal rules do not apply in that pain medication does not always relieve pain. These factors have caused misunderstanding with staff thinking SCD patients are drug seeking. Participants wanted HCPs to listen to their own expertise when considering treatment options. Study limitations, implications for clinical practice and current models of health and illness are considered, as well as possible for future research.
Supervisor: Not available Sponsor: Not available
Qualification Name: Thesis (D.Clin.Psy.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available
Keywords: BF0076.5 Psychology research ; RB0127.H355 Pain. Measurement ; RC0633 Diseases of the blood and blood-forming organs