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Title: An exploration of the psychosocial impact of the insulin pump regime : the experiences of individuals living with Type 1 diabetes and their partners
Author: Johnson, Emma C.
ISNI:       0000 0004 2739 6818
Awarding Body: University of the West of England, Bristol
Current Institution: University of the West of England, Bristol
Date of Award: 2011
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Insulin pump therapy is increasingly used as part of the modern management of Type 1 diabetes. Yet, whilst a large body of literature has addressed the glycaemic consequences of this regime, comparatively little is known about the psychosocial impact. This thesis was undertaken to address this deficit. Through employing a longitudinal, case study design, the experiences of six adults who initiated the pump are presented. Using an interpretative phenomenological approach, each case study tells the story of a participant's journey as they negotiate the stages of transition onto, and adjustment to the regime. The case studies also detail the process of termination of pump therapy for three participants. For some, pump management offered the user an enhanced status of physical and psychological health and wellbeing. For others, however, it resulted in a significant deterioration, therefore confirming that pump therapy is not a 'one size fits all' option. Informed by these findings, a second study was designed to examine the wider psychosocial impact of pump therapy, an equally unexplored area. In-depth interviews with nine partners of individuals using the regime were conducted, and analysis of these revealed that introducing the pump can help to decrease the wider disruption of diabetes and its management on daily and family life, and reduce the emotional costs of being a partner of someone with diabetes. It is identified that it is imperative that people choosing pump therapy are provided with a consistent and knowledgeable health care team to guide them through their journey. Furthermore, health professionals need to validate the experiences of partners, actively involving them in the care of pump patients, as they are invaluable members of the diabetes team. In summary, the work that constitutes this thesis has made an original contribution to knowledge through gaining unique insights into both what it is like to be the partner of an individual with diabetes who has initiated the pump, and also what it really means for a person with diabetes to make the transition to this regime.
Supervisor: Not available Sponsor: Not available
Qualification Name: Thesis (Ph.D.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available