Title:
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The experiences of students living with or affected by HIV/AIDS in Trinidad and Tobago
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The research which this thesis reports and represents sought to explore, 'The
experiences of students Living With or Affected by HIV/AIDS in Trinidad and
Tobago". The focus is on the perceptions and experiences of thirteen primary and
secondary school students. some of whom were in residential care whilst the
others lived with relatives. These perceptions and experiences are also considered
in the context of the views of care givers and key informants involved in HIVi
AIDS education in Trinidad and Tobago. The primary questions the research
addressed were: What had happened to the young people up to the time of the
research'? What were their stories with relation to the ways in which HIV/AIDS
had impacted their lives? How had they experienced schools and schooling as
HIV/AIDS affected students? What were their experiences with regard to the
health sector? and, What were their hopes and dreams for the future?
The research took a qualitative. auto/biographical approach using interviews and
participant observation as the key methods of data collection and
narrative/storying and grounded theory as the form of representation and analysis.
My own voice both as researcher and as an education professional concerned with
young people is acknowledged throughout. My aim has been to present lived
experiences - to give voice - and to explore how HIV/AIDS impacted on different
aspects of the students' lives, on their health, education. human rights, personal
social development, family dynamics and support systems.
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This thesis is an attempt to counter the silence which surrounds students living
with or affected by HIV:AIDS as it explores what can be learnt from the
perspectives of those students and their care-givers about the cultural significance
of the disease, its capacity to alter how we know ourselves and what we can do in
the midst of epidemic.
Topics addressed within the thesis include: HIV/AIDS in the Caribbean generally
and in Trinidad and Tobago specifically; the Medical Disease - transmission.
treatment, responses, advocacy; Human Rights: the Social Disease; Local
responses of Ministries of Education and Health, The Churches and The NACC;
Regional responses - C ARICOM, CAREC, PANCAP; and global response
through UNESCO's Commonwealth Chair.
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