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Title: Understanding emotional distress in multiple sclerosis : a qualitative study
Author: Blundell Jones, Joanna Katherine
ISNI:       0000 0004 2731 873X
Awarding Body: University of Sheffield
Current Institution: University of Sheffield
Date of Award: 2012
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This thesis comprises a literature review and a research report. The review considers the relational impact of Multiple Sclerosis (MS). It trials an innovative method of synthesising the literature, exploring the utility of a cognitive analytic stance to understand the patterns of relating observed in the literature. Electronic databases were searched and twenty-eight articles were included in the review. Five key relational patterns were observed: caring-cared for; intrusive-overwhelmed; ignoring-rejected; over protective-controlled; accepting-supported. A diagrammatic formulation was developed to illustrate how these patterns may interlink. Results suggest relationships are central in maintaining wellbeing. Suggestions for service intervention and support of people with MS and their families are provided. Despite some limitations, using a cognitive analytic framework to understand the literature was considered to be useful. The research study reports a qualitative exploration of emotional experiences in MS. Ten women participated in semi-structured interviews that were analysed using Interpretative Phenomenological Analysis. Women also contributed to the analytic process. Three themes emerged from the data: To be invisible or not, Visibility and disability, and It's out of my control. All themes demonstrate the unpredictable and changeable journey of living with and adapting to MS. Emotions could be overwhelming at times and the women worked hard to manage them on their own. Service and familial support was highly valued but emotional experiences seemed invisible to others. A more holistic service approach would be valued. Help-seeking for emotional difficulties was partly related to perceptions of emotion severity and coping difficulty.
Supervisor: Walsh, Sue ; Isaac, Claire Sponsor: Not available
Qualification Name: Thesis (D.Clin.Psy.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available