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Title: An interpretative phenomenological exploration of insulin dependent diabetes mellitus during adolescence : the lived experience
Author: MacRae, Lesley-Anne
ISNI:       0000 0004 2718 1905
Awarding Body: Glasgow Caledonian University
Current Institution: Glasgow Caledonian University
Date of Award: 2011
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Adolescence has been shown to be a critical time for effective self-management of insulin-dependent diabetes mellitus (IDDM) with many individuals struggling to achieve optimal levels of self-care. This study explored the experience of adolescent life with IDDM via the use of qualitative interviews, the transcripts of which were analysed using Interpretative Phenomenological Analysis (JP A). Ten adolescents between the ages of 16 and 19 years were interviewed, using'a semi-structured interview technique. Three recurrent themes were elicited across the data set and are presented within this thesis. These are: the view of IDDM as an illness, the emotional cost of IDDM, and the relationship with health care professionals. These themes allow a dialogue to continue between health-based research and that of service provision. The first theme, 'View of IDDM as an Illness', demonstrated that IDDM was often perceived as being a complex, unpredictable and at times difficult to manage illness that demanded routine. It was also perceived as incurring self-management challenges including those that were more social in nature (for example, restricting certain aspects of adolescent life). The second theme, 'The emotional cost of IDDM', indicated that experience of negative emotions, anxiety, fear and frustration in particular, was commonplace for a number of the adolescents. The source of these emotions was widespread and included peer interactions, how IDDM was perceived as an illness, difficulties inherent in achieving and maintaining good metabolic control and also those that related to the third theme, namely 'Relationship with Health Care Professionals' . Within this third theme, factors such as trust and entitlement to 3 information regarding IDDM were core features, with negative emotional states being induced when these needs were not met. Inherent within all of these themes and sub-themes was the role of emotions. They were found to be central determinants of not only the ways in which IDDM was represented but they were also seen to guide coping in terms of self-management decisions and behaviours. When considered in terms of the current literature a number of similarities and distinctions were found. Current predictive models commonly treat each construct as independent units. The present results show that complex relationships may exist, often with considerable emotional associations. Crucially, it is proposed that the metabolic implications of such emotional experience are not given sufficient attention in the current literature. With regards to ways in which the adolescents coped with the emotional experience of IDDM, the present fmdings demonstrate that aspects from a number of models of stress and coping could be applied but that one model on its own was insufficient. Any future model has to appreciate the impact of emotions in not only initial appraisals of health threats but also their contribution to subsequent appraisals of coping dependent on the behavioural outcome, in addition to the emotional outcomes and the impact of these on IDDM-specific cognitions, self-management and metabolic stability.
Supervisor: Not available Sponsor: Not available
Qualification Name: Thesis (Ph.D.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available