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Title: Adjustment and well-being among parents of children and adults with intellectual disabilities : aetiology and behavioural phenotypes
Author: Griffith, Gemma Maria
ISNI:       0000 0004 2688 0640
Awarding Body: Prifysgol Bangor University
Current Institution: Bangor University
Date of Award: 2010
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Parenting a child with intellectual disabilities is a complicated experience, and parents of children with an intellectual disability often report more stress then parents of typically developing children. This thesis attempts to expand the existing knowledge base on parental adjustment in several ways; by using both quantitative and qualitative research approaches, examining issues surrounding the rareness of a syndrome, and by exploring a wide range of parent and child variables. This thesis is primarily about families of children with rare genetic syndromes, with the exception of Chapter 2, which examines parents of children with autism, Down syndrome, and mixed aetiology intellectual disabilities. In Chapter 1, the existing literature on adjustment in families with a child with a rare genetic syndrome was critically discussed and recommendations for future research were made. In Study 1 (Chapter 2) the use of closely matched groups resulted in few differences found between aetiology groups on both child and maternal outcomes. In study 2 (Chapter 3) parents of children with rare syndromes who displayed challenging behaviour at least once a day were found to report high levels of stress, comparable to parents of children with autism. Mothers of adults with rare syndromes were the focus of a qualitative study (Chapter 4) in which it was found that mothers were heavily involved in maintaining adequate social and medical services for their offspring, and the strain this placed on them. In the final empirical study (Chapter 5) a multiple regression analysis on a large group of mothers of children with rare syndromes revealed child behaviour was not often predictive of negative or positive maternal measures, but child positive mood was. Finally, in Chapter 6, findings from the four empirical studies were discussed in relation to their theoretical and methodological value, specifically with recommendations to include a wider range of independent and dependent variables within this area of research so as to better anticipate parental adjustment. Implications for future research and interventions are also discussed.
Supervisor: Not available Sponsor: Not available
Qualification Name: Thesis (Ph.D.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available