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Title: Living with multiple sclerosis : an exploration of quality of life, independance and service provision
Author: Corizzo, Alberto Daniel
ISNI:       0000 0004 2676 0761
Awarding Body: The Manchester Metropolitan University
Current Institution: Manchester Metropolitan University
Date of Award: 2010
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This study aimed to explore the experienceso f living with multiple sclerosisi n terms of quality of life, independencea nd satisfactionw ith health, social care and voluntary services, from a community psychological perspective. The research was undertaken in a Northern Locality of England. It was a qualitative study with elements of action research. Participants included 21 people affected by multiple sclerosis, seven family members and six health and social care practitioners. The research used a range of different methods to collect data about the experiences of living with multiple sclerosis, from different perspectives, within a pragmatic paradigm. All participants completed a short quality of life questionnaire (WHOQOL-BREF) and participated in face to face interviews. These data were enriched by a focus group, a multi disciplinary conference, field observations and two meetings with the Minister of Care. Questionnaire data were analysed descriptively and thematic analysis applied to interview, focus group and observational data. Data revealed the diverse experiences of living with multiple sclerosis. Most participants affected by multiple sclerosis reported higher satisfaction with their quality of life than their health; and in many cases, the participants most physically affected seems to be the most independent. Relatives and practitioners perceived people affected by multiple sclerosis to be less satisfied than they did themselves. Local health and social care services were seen to be reactive rather than proactively promoting independence and enhancing quality of life. The local Multiple Sclerosis Society restricted itself to social activities. People affected by multiple sclerosis revealed barriers within the local community and gaps in existing service provision. Questionnaire data were deemed to be very superficial and a case was made for enrichment through the collection of qualitative information. A new model to promote interdependence while enhancing quality of life of people living with multiple sclerosis was presented and the role of the scholar activist was discussed.
Supervisor: Not available Sponsor: Not available
Qualification Name: Thesis (Ph.D.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available