Use this URL to cite or link to this record in EThOS:
Title: Which features of cystic fibrosis might inform pregnant women's prenatal testing decision?
Author: Wright, Katherine Fenlaugh
ISNI:       0000 0004 2674 7487
Awarding Body: University of Leeds
Current Institution: University of Leeds
Date of Award: 2009
Availability of Full Text:
Access from EThOS:
This study explores how we can offer genuinely informed choice to women considering prenatal testing (PNT) for conditions arising from foetal abnormalities. Rapid advances in technology mean that tests for hundreds of conditions will shortly become routinely available. However, understandings of how to offer informed choice have fallen behind. Until very recently, information in the PNT context focussed on the process of testing rather than conditions. Moreover, where it did address conditions, information was selected by clinicians and was generally medically focussed and negative. It is now agreed this information should be 'balanced', so that women can make decisions that are in line with their own subjective values. However the question of what constitutes a balanced picture of many conditions remains unexplored. In particular, the possibility that there are a number of equally valid distinct and competing subjective viewpoints requires investigation.
Supervisor: Not available Sponsor: Not available
Qualification Name: Thesis (Ph.D.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available