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Title: The development of a quality of life questionnaire for adult patients receiving home parenteral nutrition
Author: Baxter, Janet P.
ISNI:       0000 0004 2672 5149
Awarding Body: University of Aberdeen
Current Institution: University of Aberdeen
Date of Award: 2008
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Home parenteral nutrition (HPN) is an established treatment for the management of patients with severe intestinal failure.  At the moment, it is the treatment of choice for those patients who are unable to eat or drink sufficient food or fluid to maintain nutrition or fluid status. There are no quality of life assessment tools that have been developed and validated specifically for this patient population, previous studies have used generic instruments or techniques not validated in this patient population. A method of objectively assessing the quality of life of patients treated with HPN has been developed – the HPN-QOL questionnaire.  This was designed using qualitative research methods to identify the issues particular to that patient population, thereby eliciting patients’ perspectives on their own quality of life.  The questionnaire was subjected to rigorous psychometric analysis to validate its use in the HPN population. The HPN-QOL has been translated into seven European languages.
Supervisor: Not available Sponsor: Not available
Qualification Name: Thesis (Ph.D.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available
Keywords: Intestinal Diseases ; Parenteral feeding ; Home nursing