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Title: Parent or nurse? : caring for a technology-dependent child at home
Author: Kirk, Susan Amanda
ISNI:       0000 0001 2414 2925
Awarding Body: The University of Manchester
Current Institution: University of Manchester
Date of Award: 2002
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A group of children with a continuing need for the support of medical technology have emerged in community settings as a result of medical advances and government policies that have emphasised the community as the arena for care. However, little is known about this group of children in the United Kingdom. This study aimed to explore parents' experiences of caring for a technology-dependent child, in particular to discover how parents experienced providing care of an intensive nature that involved them in performing clinical procedures on their own children. In-depth qualitative interviews were conducted with the parents of 24 children and Grounded Theory methods were used in analysing the data. 'Being a parent' emerged as the central category in the analysis which had the ability to explain much of parents' experiences of caring for a technology-dependent child. Parents' accounts of their experiences revealed a tension between being a parent and having to provide care of an intensive and technical nature for their children (which they described as nursing). Parents responded to this tension by constructing their role and relationship to their child as being first and foremost that of a parent. They did this firstly by appealing to the concept of individualisation as a means of defining the care they provided as being different to nursing and professional care-giving, both in terms of how care was provided and the underpinning knowledge. Secondly parents used a range of strategies to 'normalise' family life and their technology-dependent child. This 'normalised' the experience of parenting and contributed to parents seeing themselves as parents and not nurses.
Supervisor: Not available Sponsor: Not available
Qualification Name: Thesis (Ph.D.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available