Title:
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An Investigation into the Relationship between Psychological Well-being, Burden and Distress in the Spouse Carers of People with Dementia.
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Research shows that there are a range of negative consequences associated with caring
for a person with dementia. These consequences can take the form of burden, stress or
distress. The stress process model is one model which has been proposed to explain these
negative consequences. This model would predict that carers of people with dementia
would experience a decline in well-being as their experience of stress and burden
increases. However, some research suggests that carers may be able to experience
positive consequences from their caring role alongside the experience of stress. Research
within the field of adversarial growth suggests that for some people, increases in wellbeing
can occur as a consequence of the experience of stress and this may be one
explanation for this finding.
Aims
This study looked at the relationship between burden, distress and well-being in spouse
carers of people with dementia in order to consider whether the experience of burden
causes a reduction in well-being.
Method
This study utilised a cross-sectional correlational design. A total of 56 spouse carers of
people with dementia completed questionnaire packs containing measures of burden,
distress and psychological well-being.
Results
In this study distress and burden showed moderate positive correlations and
psychological well-being and distress showed moderate to strong negative correlations.
However, most aspects of psychological well-being showed no significant relationship
with burden. The exception to this is environmental mastery and self-acceptance which
showed small negative correlations with subjective burden.
Conclusion
The results of this study suggest that adaptations would need to be made to the stress
process model in order to fully explain the range of experiences of spouse carers of
people with dementia. Further research is needed in order to explain the processes
through which well-being is maintained despite the experience of burden.
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