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Title: 'What the future holds' : the development and utilisation of a semi-structured interview schedule to facilitate family carers of adults with intellectual disability in permanency planning that spans the quality of life domains
Author: O'Grady Reilly, Katherine
ISNI:       0000 0001 3452 9568
Awarding Body: University of Ulster
Current Institution: Ulster University
Date of Award: 2007
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This thesis deals with the enduring problems families face who have a member with intellectual disability when they embark on the process of permanency planning. Ageing families of an adult with intellectual disability who start to plan for the future generally think of making hard and fast decisions about where the person live 'when the time comes' and who will take over their direct care. The literature reveals trepidation around future permanency planning which i.s a common feature of families who have provided lifelong care of their member with disability. It reveals that up to one-third of families ignore, neglect or simply do not engage in any formal planning or attempts to 'launch' their member. Typically, when ageing families do make plans often crisis driven their singular focus on a place to live can mean that other meaningful aspects the persons' quality of life can get lost in the shuffle. In order to address this clinical problem and facilitate family carers in mindful planning that incorporates the quality of life domains, an instrument called 'What the Future Holds' was designed. It includes sections on social, health, financial, vocational and residential well being. 'What the Future Holds' provides a format for semi-structural interviews which yielded both quantitative and qualitative data. In order to consider the efficacy of the instrument, it was implemented in both Northern Ireland and the Midlands of Ireland for this study. The data and outcomes are presented with discussion and recommendations.
Supervisor: Not available Sponsor: Not available
Qualification Name: Thesis (Ph.D.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available