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Title: How do people with a diagnosis, caregivers and health care professionals represent dementia : an exploratory assessment using the common sense self regulation model
Author: Glidewell, Elizabeth
ISNI:       0000 0001 3500 9898
Awarding Body: University of Aberdeen
Current Institution: University of Aberdeen
Date of Award: 2008
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The Common Sense Self Regulation Model (CS-SRM) proposes that individuals represent threats to their health both cognitively and emotionally.  The theory proposes that how the individual cognitively represented their condition and their parallel emotional representation, combine to form an Illness Representation (IR) which directs self-regulatory behaviour. Aims were to explore the applicability of IRs to people with a diagnosis of dementia, caregivers and health care professionals.  A secondary aim was to develop a dementia specific Illness Perception Questionnaire Revised (IPQ-R) to elicit the IRs of people with a diagnosis and those involved in their care. Qualitative analysis of both spontaneous writing and interviews, plus quantitative survey methodologies were used to elicit how people represent dementia and develop a dementia specific IPQ. These investigations found that people with a diagnosis of dementia do represent their condition in terms of IRs without prompting.  However, when prompted, additional IR content is elicited. A Discriminant Content Validity study found that items in the IPQ-R can operationalise IRs.    However, some items were judged by those unfamiliar with the model to measure constructs other than intended.  Interview data was used to create a dementia specific IPQ-R.  Versions were also created to elicit how caregivers and health care professionals think that the person represents their condition.   Results suggest that IRs can be used to systematically explore shared and discrepant understandings.  Taken together the results presented in this thesis suggest that IRs can improve our understanding of how dementia is thought about.
Supervisor: Not available Sponsor: Not available
Qualification Name: Thesis (Ph.D.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available