Title:
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Decisions about feeding after stroke
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In the acute stages of stroke where the patient experiences dysphagia or reduced
levels of consciousness, clinicians make decisions on how a patient's food and fluid
needs will be met. These decisions include whether the patient should take oral diet,
or whether nutrition should be administered via a Nasogastric (NG) or Percutaneous
Endoscopic Gastrostomy (PEG) tube. This qualitative study investigates the process
by which clinicians make decisions over the timing and mode of nutrition or
hydration interventions available to them.
Data were collected from twenty patient participants and twenty-four clinicians from
two NHS Trusts. The patient data comprised both clinical case note data and
observational data taken from clinical discussions on the ward during their
admission. In-depth interviews were undertaken with clinicians to explore their
experiences and views on decision making for nutrition and hydration. The data
were analysed to generate substantive theory following the principles of grounded
theory.
The findings suggest that the decision making process follows a normative pathway
of 'not to feed' the patient which is based on three key beliefs. These were that;
nutrition and hydration were viewed as distinct and different interventions, with
nutrition not being considered essential to recovery after stroke; the risk of
pulmonary aspiration was perceived to outweigh the benefits of providing nutrition;
and, that nutritional interventions could prolong a poor Quality of Life for a patient.
Deviation from this normative pathway by clinicians was influenced by four key
themes; views about the patient's prognosis; beliefs about the nutrition and
hydration interventions available; perceived responsibilities of those involved; and,
personal conscience issues. The findings from the study are discussed in the
context of clinical practice and the implications for future research
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