Title:
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An exploration into the processes of identifying children with autistic spectrum disorders
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In the field of autism spectrum disorders (ASD) there has been an increasing amount
of quantitative research exploring the symptoms leading to a possible diagnosis of
ASD contributing to the knowledge and understanding in this area. This has occurred
both in the clinical arena of diagnosis and in the social sphere of access to both
additional health and educational resources. However, a number of research difficulties
exist with previous studies. For example, the diagnosis and access to resources are
based on a homogenous population; more specific to this research, ethnicity does not
appear to have been considered and then operationalised into diagnostic models.
Not to acknowledge ethnicity in the realm of objective categories around ASD has
resulted in little or no work to explore the current orientation of ASD amongst ethnic
minorities in England. This doctoral research intends to shed some light in the area of
ASD amongst ethnic minority groups. It is divided into three broad interrelated parts.
First, an attempt is made to critically summarise and evaluate the research undertaken
in the field of ASD. The literature review focuses on the following issues: what are
autistic spectrum disorders, special educational needs policy and practice for families
of second language learners, and professionals training and perspectives in the
diagnosis of autistic spectrum disorders.
Based on these findings, part two analyses quantitative data on Asian and white
children with a diagnosis of ASD and a statement for special educational need in
thirteen local educational authorities. The objective being to examine the link between
ethnicity and a diagnosis of ASD. The statistical manipulation in the results section
supports the view that there is a statistically significant difference in the prevalence
when comparing the statementing rates of children with a diagnosis of ASD and their
ethnicity.
The third part of this research is a more penetrative inquiry, using qualitative
interviews, in one local education authority and was directed towards professionals
involved in the diagnosis of ASD. The findings of this analysis suggest that the
diagnosis of ASD is an interpretative process that appears to be influenced by the
context in which the decision is being undertaken and the beliefs of the professionals
involved. It also suggests that the practice of diagnosis of ASD differs from that
suggested by the medical model. This research highlights some of the implications in
assuming a model based on the rational approach in a field of ASD. The research
suggests that the current processes are undertaken through observations of
behaviours that are reliant on clinical judgements and fail to take into account cultural
and social differences. It concludes by suggesting that a lack of acceptance of the
interpretative element of the ASD diagnosis does question the appropriateness of the
diagnosis and how this may impact on the child, parent and family from ethnic minority groups.
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