Use this URL to cite or link to this record in EThOS: http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.679479
Title: The participation of disabled children, young people and their parents in health and social care decisions
Author: McNeilly, Patricia
ISNI:       0000 0004 5371 6440
Awarding Body: Queen's University Belfast
Current Institution: Queen's University Belfast
Date of Award: 2014
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Abstract:
There is an increasing expectation that children, young people and their parents should participate in decisions that affect them. This includes decisions about their health and social care and collective or public decisions about the way in which services are designed, delivered and evaluated. Indeed this has become a policy priority across the UK (Franklin and Sloper, 2009). The participation of disabled children and young people has been slow to develop and concerns have been expressed about progress in this area. This ESRC funded study aimed to explore the experience and outcomes of the participation of disabled children, young people and their parents in health and social care decisions. Participants in this mixed method study were 77 parents, 18 disabled children and young people and 90 professionals from the Southern Health and Social Care Trust in Northern Ireland. Findings revealed that while families are clearly participating in decisions and there are positive outcomes associated with this, it needs further development. This thesis makes a unique contribution to this field by exploring both the process and outcomes of participation and by proposing a model of family participation within the context of social justice. Implications for practice, services and policy are discussed.
Supervisor: Not available Sponsor: Not available
Qualification Name: Thesis (Ph.D.) Qualification Level: Doctoral
EThOS ID: uk.bl.ethos.679479  DOI: Not available
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