Use this URL to cite or link to this record in EThOS: http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.676897
Title: Exploring experiences of intimate toileting care and the impact on the family dyad relationship for people with dementia and their cohabiting family carer
Author: Cole , Laura Adaline
ISNI:       0000 0004 5367 8923
Awarding Body: St George's, University of London
Current Institution: St George's, University of London
Date of Award: 2015
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Abstract:
Despite the extensive literature on dementia and family caring, the experience and impact of providing or receiving intimate toileting care has largely been unexplored. This thesis contributes to and extends the knowledge of dementia and family care. The study investigated the experiences of people with dementia and their main family carer (the family dyad) regarding intimate toileting care, and examined how this type of care may have impacted on their family dyad relationship. A longitudinal qualitative methodology was used and thirteen family dyads were interviewed about their experiences of providing or receiving intimate toileting care. Interviews took place at three-monthly intervals over a year; transcribed, and analysed using a descriptive phenomenological method in psychology. Family carers' personal attitudes towards supporting the person with dementia in intimate toileting care revealed a task focused approach for some and feelings of disgust and distress for others. Many family carers perceived the quality of their family dyad relationship to have declined over time, and attributed this to the symptoms of dementia. However, some participants reported how intimate toileting care had strengthened their dyad relationship. Although not all negative effects on the dyad relationship were recognised by family carers, some did identify that unsupportive and ineffective care from statutory services had put extra stress on them as family carers and had a negative impact on their family dyad relationship. This thesis advances knowledge of the experiences of family carers and people with dementia in managing intimate toileting care and the effects this has on their dyad relationship. Supporting and maximising the quality of family dyad relationships could lead to the person with dementia spending longer at home, rather than moving to a care home setting, and improving quality of life. Implications for health and social care support for family carers and people with dementia are discussed.
Supervisor: Not available Sponsor: Not available
Qualification Name: Thesis (Ph.D.) Qualification Level: Doctoral
EThOS ID: uk.bl.ethos.676897  DOI: Not available
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