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Title: Adherence to cystic fibrosis treatment regimes : the association between healthcare provider relationship styles and self-efficacy, motivation to adhere and emotional well-being in adolescents and young adults
Author: Squire, J.
Awarding Body: University of Edinburgh
Current Institution: University of Edinburgh
Date of Award: 2002
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Introduction: Cystic fibrosis (CF) is a chronic condition that requires an intensive daily treatment regimen to control the symptoms and prolong life expectancy. Non-adherence to treatment, however, has been documented within the literature and is a major concern of health care professionals. Published studies investigating non-adherence have tended to neglect the role of the patient-practitioner interaction. The Self-determination Theory of Human Motivation (Deci and Ryan, 1985) highlights the importance of autonomy supportive professional relationship styles in increasing patients’ self-efficacy and motivation for self-management. To date, no study has applied this theory within the CF population. Objectives: To examine whether there is an association between health care provider relationship styles and self-efficacy and motivation to adhere in adolescents and young adults with CF. Additionally, to investigate whether emotional well-being has an effect on adherence to treatment regimens. Design: A cross-sectional, investigative study was undertaken with CF patients, aged between 12 and 30 years, attending out-patient CF clinics in Tayside and Forth Valley. Method: Participants completed four measures that assessed their perceptions of health care providers’ relationship styles, self-efficacy, motivation to adhere and emotional well-being and provided a self-rating estimate of adherence. Semi-structured interviews were conducted with a number of participants to gather more detailed information regarding their personal experiences of CF. Demographic information was obtained from participants’ hospital case notes. Results:  As hypothesised, the results suggested that autonomy supportive professional relationship styles were associated with increased motivation to adhere and self-efficacy in adolescents and young adults with CF. Patient-practitioner interactions should therefore be taken into consideration in future studies of adherence. A thematic analysis of the interview data indicated that the participants’ experiences of CF were varied. Conclusion: The research findings are discussed with reference to the current literature and clinical implications and future areas of research are identified.
Supervisor: Not available Sponsor: Not available
Qualification Name: Thesis (D.Clin.Psych.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available