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Title: Uncertainty, family responsibility, and supportive nursing care of chronic heart failure patients and their families
Author: Rukholm, Ellen Elizabeth
Awarding Body: University of Edinburgh
Current Institution: University of Edinburgh
Date of Award: 1999
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The aim of this thesis was to explore patients', families', and nurses' perceptions of the supportive nursing care provided by nurses to patients and their families during acute episodes of chronic heart failure and on a day to day basis at home. The research purpose was to gain knowledge that would advance understanding of supportive nursing care and contribute to a family derived theoretical basis for family nursing. Accordingly, a qualitative study of chronic heart failure patients, their families and nurses in acute and rehabilitative settings was undertaken using a grounded theory approach. Comparative analysis of the data led to the emergence of two major categories: uncertainty and family responsibility. The properties, conditions and consequences of uncertainty, family responsibility and supportive nursing care are explicated in the development of a theory of supportive nursing care for patients and their families. Uncertainty represents the context within which family responsibility and supportive nursing care are situated. Family responsibility for taking care of and protecting the patient emerged as a response to the uncertainty of a chronic life threatening illness under conditions of deteriorating health. Consequences of family responsibility involved major adjustments in living arrangements, relationships and activities of daily living that reflect the reciprocal relationship between the illness and the family and the family and the illness and demonstrate the utility of systems theory as a foundation for family nursing. Supportive nursing care for patients and their families evolved as an integration of physical, emotional and informational support to create a healing environment in which patients and their families feel comforted and reassured.
Supervisor: Not available Sponsor: Not available
Qualification Name: Thesis (Ph.D.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available