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Title: Capturing the impacts of end of life care on those close to the dying for use in economic evaluation
Author: Canaway, Alastair
ISNI:       0000 0004 5367 8261
Awarding Body: University of Birmingham
Current Institution: University of Birmingham
Date of Award: 2015
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This thesis reports work to develop and score (value) a measure to capture the impact of end of life care (EoLC) on those people close to the dying. This work is conducted in response to the need to capture wider impacts of EoLC for economic evaluation where there is lack of appropriate measures. To develop the measure, twenty seven in-depth interviews were conducted with those who were recently bereaved or close to somebody receiving EoLC. Constant-comparative analysis was used to develop dimensions for the measure. Pictorial tools were used to explore who is close to those at the end-of-life and therefore could legitimately be included within the evaluation of EoLC interventions. The measure was valued using an exploratory deliberative methodology conducted with six focus groups comprising members of the public. The measure contains six dimensions: \(communication\) \(with\) \(those\) \(providing\) \(care\) \(services\), \(practical\) \(support\), \(privacy\) \(and\) \(space\), \(emotional\) \(support\), \(preparing\) \(and\) \(coping\) and \(emotional\) \(distress\). The communication and practical support attributes received the greatest weighting in the valuation process. On average, there were eight individuals close to those at EoL. This work significantly enhances the potential for including close-persons in economic evaluation of interventions at the end of life.
Supervisor: Not available Sponsor: European Research Council
Qualification Name: Thesis (Ph.D.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available
Keywords: HB Economic Theory ; HV Social pathology. Social and public welfare ; RA Public aspects of medicine