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Title: Experiencing support: Parents of children diagnosed with ASD
Author: Morris, Hannah Christina
Awarding Body: University of Bristol
Current Institution: University of Bristol
Date of Award: 2013
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The aim of this study was to explore the differentiated experiences of parents who have a child with a diagnosis of ASD and investigate how parental engagement varies with a range of different circumstances, care time-lines and family backgrounds. This study reports data from seven parents who have a child with a diagnosis of ASD. Information was gathered through semi-structured interviews and the use of an events timeline. All data was analysed using Interpretative Phenomenological Analysis. The analysis confirmed that parents have very different experiences across the care-pathway. Some parents experienced a number of critical periods whereby they found it particularly difficult to cope with their child's behaviour. Relationships with professionals were extremely important in building parental confidence across the whole care-pathway. Parents cited that they would like more professionals to develop further care-giving skills in partnership building in order to understand, appreciate and include the parent voice. The study provides recommendations for all professionals and services working with parents who have a child with ASD, in particular the need for professional training in care-giving skills, the importance of providing early intervention in complex cases and the need for additional support at crisis points and during the secondary years.
Supervisor: Not available Sponsor: Not available
Qualification Name: Thesis (Ph.D.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available