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Title: Preventing intellectual disability : ethical issues
Author: Louhiala, P. J.
Awarding Body: University of Wales Swansea
Current Institution: Swansea University
Date of Award: 2001
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The thesis opens with four cases that demonstrate various aspects of the prevention of intellectual disability (ID). The following four chapters introduce ID and many related issues (Chapter 2), the concept of geneticisation (Chapter 3), the epidemiology of ID (Chapter 4) and the concept of prevention (Chapter 5). In Chapter 6 prenatal diagnosis and screening are examined thoroughly. The two major models, the reproductive autonomy model and the public health model, are described and scrutinised. For example, the questions of informed consent, screening as a request of the women involved, reassurance, concept of risk, locus of control and eugenics are critically discussed. Chapter 7 deals with genetic counselling in general and directive versus non-directive counselling in particular. Chapter 8 asks the question 'Why should ID be prevented?' Five arguments are presented and critically examined: the eugenic argument, the foetal-wastage argument, the social burden argument, the family burden argument and the quality of life argument. In Chapter 9 Mary Ann Warren's multi-criterial theory of moral status is presented and applied to potential or actual individuals with or without intellectual disability. More practical issues are raised again in Chapter 10, which deals with the prevention of ID with respect to three syndromes. The conclusive chapter (11) returns to the cases described in the beginning.
Supervisor: Not available Sponsor: Not available
Qualification Name: Thesis (Ph.D.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available