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Title: Adaptation of quality of life questionnaires for use in breast oncology practice
Author: Taylor, Sally
Awarding Body: University of Leeds
Current Institution: University of Leeds
Date of Award: 2013
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Introduction. There are many cancer specific health-related quality oflife (HRQOL) instruments available but their utility in clinical practice has not been systematically evaluated. The aim was to develop a HRQOL questionnaire package for breast cancer patients for use in routine practice. It is anticipated that the questionnaire would improve patient care and experiences by improving communication, symptom monitoring and referrals. Methods and results. A comprehensive development strategy was employed to create QuEST-Br. The strategy included exploring issues discussed in oncology consultations of 52 breast cancer patients (208 consultations), a literature search, interviews with 10 patients and 10 healthcare professionals, validation of the questionnaire in a sample of 145 patients and validation in over 400 patients as part of a larger study. A 53 item questionnaire (QuEST-Br) was created. An additional concerns checklist was developed for use in conjunction with QuEST-Br to allow patients to focus consultation discussions. The checklist was developed through literature searches, interviews with patients and healthcare professionals and validation alongside QuEST-Br. Eleven women were interviewed about their experiences of breast cancer and sexual problems. Results confirmed previous findings that sexual issues were rarely discussed and healthcare professionals were unsure what support was available. A systematic review identified the most effective type of intervention for breast cancer patients experiencing sexual problems would include sexual counselling and would target the patient and partner. Conclusion. I developed and evaluated an effective model for screening and identifying patient needs. Sexuality was identified as an unmet need. I explored ways in which these needs may be better addressed in routine clinical practice.
Supervisor: Not available Sponsor: Not available
Qualification Name: Thesis (Ph.D.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available