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Title: Health education and community development for sickle cell disorders in Brent
Author: Anionwu, Elizabeth Nneka
Awarding Body: Institute of Education (University of London)
Current Institution: UCL Institute of Education (IOE)
Date of Award: 1988
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This thesis gives an account of ten years work in Brent which has utilised community development methods to initiate a range of health education and counselling initiatives for sickle cell disorders. As a background the social, political and medical experiences in the United States of America are described in an attempt to analyse the role of institutional racism and the failure of conventional health planning systems to provide black and ethnic groups with relevant services. The major part of the thesis describes a systematic programme of local development work in Brent, which was conducted on the basis of collaboration between the local voluntary organisation and the local health authority. The absence of any systematic data concerning the prevalence of the disorders in Brent prompted research to establish a register of local patients. A survey amongst community nurses in Brent and Paddington identified a low level of awareness about the condition mainly due to a lack of information in basic training. Taped interviews with 22 local parents of affected children revealed harrowing experiences, reflecting the lack of information and support from within the National Health Service. These findings indicated the need for an alternative, community development approach to promote sensitive, non-racist health education and counselling initiatives. This led to the setting up in Brent of the first Sickle Cell Counselling Centre in Britain. Educational initiatives have been developed for the local community, for affected families, and for health professionals. The experience in Brent reveals how black health workers, committed to community development strategies, can effect change within the NHS in relation to the health needs of black and ethnic groups. The significance of the Centre as a possible model for other health districts is examined, in particular as an approach to redressing inequality, encouraging community participation, and promoting inter-agency collaboration.
Supervisor: Not available Sponsor: Not available
Qualification Name: Thesis (Ph.D.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available