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Title: Investigating the experiences of South Asian parents who have a child with autism : the significant effects of culture
Author: Theara, Gurdip
Awarding Body: University of Bristol
Current Institution: University of Bristol
Date of Award: 2013
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It has been identified that there is a need to diversify the current knowledge base of autism and there remains a distinct lack of cross-cultural research. This research investigates the experiences of South Asian parents living in the UK who have a child with autism, as this has been identified as an under-represented cultural group by previous researchers. Culture is discussed as an important factor shaping experience and this research explored the effects of parents' culture on their construction and experience of autism. The study is informed by key ideas from sociocultural theory (disability is understood differently depending on the social context of the individual) and intersectionality (the intersection of factors relating to culture and disability are significant in shaping experience). A grounded theory design was chosen, with the aim of developing a theoretical model that could explore the interplay of factors that shape the experience of South Asian parents who have a child with autism. Nine parents were interviewed and the data was analysed using grounded theory methods, based on the Corbin & Strauss (2008) version. The findings are presented in detail, including the grounded theory model developed during the analysis process. The main finding that South Asian parents' construction of autism was based on a medical model understanding is discussed, as well as the sources of knowledge that were considered to inform this construction: parents' direct exposure to information, parents' cultural values and beliefs and the effects of migrating to the UK. -The implications of these findings are considered, with particular thought given to how professionals such as Educational Psychologists can best support South Asian parents who have a child with autism.
Supervisor: Not available Sponsor: Not available
Qualification Name: Thesis (Ph.D.) Qualification Level: Doctoral
EThOS ID:  DOI: Not available